Ann & Robert H. Lurie Children's Hospital of Chicago on LinkedIn: STATUS UPDATE AS OF 11 a.m. CST, May 20, 2024: Lurie Children’s is no… (2024)

Congratulations to Miriam Bornhorst, MD, Hematology, Oncology, Neuro-Oncology&Stem Cell Transplantation, on receiving a 2024 Make NF Visible Community Recognition Award presented by Children's Tumor Foundation. These awards celebrate individuals or groups who have made a significant impact by raising awareness for NF (neurofibromatosis) in their local community, nationally, or globally. Dr. Bornhorst was awarded the Make NF Visible Clinician Award."Her commitment is evident beyond the exam room through her active involvement in organizing NF Family Day at Children’s National in DC and her participation in the Shine A Light NF Walks in DC and Virginia. Known for her thoughtfulness, compassion, and approachability, she consistently goes the extra mile to support individuals within the community."Learn more about the awards and other honorees at https://lnkd.in/gyzZdtsy

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Colin has completed marathons and Ironman Triathlons before, but running the Chicago Marathon in a Lurie Children’s uniform will have a deeper meaning for the Chicago native, a two-time brain tumor survivor.At 14, Colin was diagnosed with a rare ganglioglioma brain tumor. Gangliogliomas often grow slowly and do not spread to other parts of the body, but without timely treatment they can develop into a higher grade, more malignant tumor. Colin was referred to Lurie Children’s and underwent surgery the next day to have the tumor removed. The diagnosis and surgery unfolded quickly because of the large size and increased pressure on his brain. It was especially challenging given the tumor’s sensitive location involving areas of memory, speech, and motor function.Colin said his medical team, “felt like family,” and kept him calm and optimistic. The surgery was successful in removing most of Colin’s tumor. After surgery, he went to rehabilitation to work on his speaking, memory, and walking. Since 2015, Colin has overcome many obstacles and has since made a full recovery. Colin felt a wakeup call to embrace life’s opportunities while recovering from his first surgery. Inspired by the kindness and compassion of his teachers, the persistence and dedication of his medical team, and a family friend committed to pushing the limits, Colin focused his energy on training as an endurance athlete. He has completed several marathons and recently finished his second Ironman Triathlon in Texas. Colin’s inspiring journey has not been without setbacks. Colin’s tumor returned years later, and he had a second surgery at Lurie Children’s in 2023. Despite the tumor’s recurrence, Colin continues to make the most of each day. At 23, not only is Colin inspiring Lurie Children’s patients to chase their dreams, but he is also inspiring the next generation as a pre-school teacher for deaf and hard of hearing children. During Brain Tumor Awareness Month, Lurie Children’s celebrates that brain tumor patients are so much more than their diagnoses. Thanks to incredible research and dedicated care taking place, there is more hope for pediatric brain tumor patients than ever before. Lurie Children’s is looking forward to cheering Colin on in the 2024 Bank of America Chicago Marathon!

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As Food Allergy Awareness Week comes to an end, allergist Dr. Elizabeth Lippner shares information about a groundbreaking #foodallergy study taking place at Lurie Children’s. For patients like 4-year-old Ariah, strides in food allergy research have brought hope to families who live with life-threatening allergies. Watch the story from WBBM | CBS Chicago https://lnkd.in/eizpWCse. #peanutallergy #foodallergies #allergy #research

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Hospital stays can cause worry, stress and anxiety in anyone, particularly in kids who might not always know how to make sense of what exactly they're feeling or vocalize it. We're proud that our Lurie Children's staff is deeply committed to supporting patients' emotional and mental well-being during some of the most physically challenging moments of life. Our psychologists, child life specialists, art therapists, music therapists, education liaisons, recreation therapists and so many others are experts at meeting patients where they are, addressing their unique needs and helping them process their hospital experiences, all while building trusting and safe relationships.NBC Chicago spotlighted these efforts in their recent Mental Health Monday segment - check it out below! #MentalHealthAwarenessMonthhttps://lnkd.in/g8y86gz5

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Join theCenter for Food Allergy & Asthma Research (CFAAR)at Northwestern University - The Feinberg School of Medicine and Lurie Children's in Chicago, IL,Sunday, June 30thfor the2024 Summit for Advancing Equity in Food Allergy (SAEFA). Summit for Advancing Equity in Food Allergy (SAEFA): CFAAR invites experts, payors, policy makers, patients, and industry partners to join us for a series of health equity panels that will focus on barriers, strategies, and measuring progress in prevention, diagnosis, and treatment of food allergies and related conditions. To register, visit https://lnkd.in/g5FK_sdE.#foodallergy #healthequity

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Daily immunotherapy delivered via a dermal patch reduced the risk of reactions, including anaphylaxis, in children with an immunoglobulin E (IgE)–mediated cow’s milk allergy, according to a recent clinical trialpublishedinJAMA Pediatrics. “This treatment, which does not involve ingesting the allergen daily, is a promising development in the food allergy therapeutics space,” said co-authorMelanie Makhija, MD, Allergy and Immunology physician at Ann&Robert H. Lurie Children’s Hospital of Chicago , Stanley Manne Children's Research Institute and Associate Professor of Pediatrics at Northwestern University - The Feinberg School of Medicine University https://lnkd.in/gH-K2_un#foodallergy #foodallergywareness #allergist #research #pediatrics

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The last year and a half has been marked by many ups and downs for the McBride family. What began as suspected GI troubles in now 7-year-old Beckett quickly revealed something much more worrisome: a brain tumor diagnosis. Due to the location of Beckett’s low-grade glioma, surgical removal was unfortunately never an option for him. Instead, he began an intensive chemotherapy treatment plan last year that took a serious toll on his body, eating habits and bright personality. As with so many experiences in life, things seemed to get worse before they got better. But today, and in honor of #BrainTumorAwarenessMonth, we’re so happy to share that things did, in fact, get better for Beckett. After carefully reevaluating and adjusting his treatment strategy with neuro-oncologist Dr. Angela Waanders, today Beckett is showing the type of progress that’s filled his family with a refreshed sense of hope – an essential to help carry them through this cancer journey they’re on. “We’ve started doing little sighs of relief,” Beckett’s mom, Nora, said. “He’s way more like the kid he was before the tumor started affecting him. We get to see the energy, the silliness, his personality is back to where it was. It does feel like a light at the end of the tunnel even though we still live day to day, chemo to chemo, MRI to MRI.”Lurie Children’s Brain Tumor Program offers highly specialized, state-of the-art care for children and teens with brain tumors, and the expert team is committed to identifying a treatment plan that addresses the needs of each unique patient. Read more about how Beckett got his shine back after the cloud of a brain tumor diagnosis on the blog: https://lnkd.in/e_PMavB2, and more about Lurie Children’s Brain Tumor Program and critical research at luriechildrens.org.

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Join theCenter for Food Allergy & Asthma Research (CFAAR)at Northwestern University - The Feinberg School of Medicine and Ann & Robert H. Lurie Children’s Hospital of Chicago in Chicago, IL,Sunday, June 30thfor thePediatric Food Allergy Care Conference (PFACC). To learn more and to register, visit https://lnkd.in/egZg8qUY. #foodallergy #allergy #pediatrics #allergist

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Lurie Children’s has built a reputation of trust among families by providing the best possible care for children with complex heart conditions. In this podcast episode, David Winlaw, MBBS, MD, FRACS, the surgical co-director of Lurie Children’s Heart Center, discusses early diagnosis of heart conditions, advancements in neonatal heart surgery, and the integrated cardiac team at Lurie Children’s. Listen to hear more about how the Lurie Children’s Heart Center cares for some of the smallest and most complex patients.https://lnkd.in/gFP5BQZA

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